I actually got an officially confirmed dx today! Something I never thought would happen until they came up with a test that did not require you to gluten yourself.
I went to a very progressive & savvy NP. He listened well & was quite familiar with celiac disease and dh which really surprised me & the nurse who took my vitals beforehand was also well versed in celiac. I brought him all my records as well as my photos of my dh & of course myself with some dh still giving me fits. He read my records of hysterectomy of neuro problems, my bone scans & joint problems, arthritis, MRI of spine, CT scan of my fatty liver & listened to what I had been through as well as how much I have improved since going gluten-free. He listened to my family history. And he said, "You figured it out on your own. You are right. You are celiac with dh." You could have knocked me over with a feather! He ordered tests for B-12, D3, complete check of iron, cortisol, TSH, T3, T4, CBC, CMP, lipids, DHEA (??? haven't looked that up yet) as well as T. Testosterone, Progesterone & something else I can't read Estrociel????
Wow! I'm sort of stunned. I had a "gut" instinct about him but didn't really expect my gut to be so right.
I think I just got really lucky!
It was interesting that he had a folder full of copies of the Paleo diet in the exam room. And he said to me, "It's amazing HOW many diseases are quite simply food related".
He has spoken to the compounding pharmacy to make me up some gluten-free, iodine free, soy free, salicylate free "Tylenol & Aleve" type pain relievers.
He also wants me to begin taking MSM 1 gm. 2 x day for the joints/bones.
I went to a very progressive & savvy NP. He listened well & was quite familiar with celiac disease and dh which really surprised me & the nurse who took my vitals beforehand was also well versed in celiac. I brought him all my records as well as my photos of my dh & of course myself with some dh still giving me fits. He read my records of hysterectomy of neuro problems, my bone scans & joint problems, arthritis, MRI of spine, CT scan of my fatty liver & listened to what I had been through as well as how much I have improved since going gluten-free. He listened to my family history. And he said, "You figured it out on your own. You are right. You are celiac with dh." You could have knocked me over with a feather! He ordered tests for B-12, D3, complete check of iron, cortisol, TSH, T3, T4, CBC, CMP, lipids, DHEA (??? haven't looked that up yet) as well as T. Testosterone, Progesterone & something else I can't read Estrociel????
Wow! I'm sort of stunned. I had a "gut" instinct about him but didn't really expect my gut to be so right.
I think I just got really lucky!
It was interesting that he had a folder full of copies of the Paleo diet in the exam room. And he said to me, "It's amazing HOW many diseases are quite simply food related".
He has spoken to the compounding pharmacy to make me up some gluten-free, iodine free, soy free, salicylate free "Tylenol & Aleve" type pain relievers.
He also wants me to begin taking MSM 1 gm. 2 x day for the joints/bones.