I wasn't going to post until after I have a diagnosis, but I've been reading the forums now for days and feel the need to say "hi."
Short story, I've had eczema my entire life (I'm over 50 now) and have basically learned to live with it. Until a few weeks ago when I happened to google "rash on buttocks" and it led me to DH. Add that to the odd rash on my arms (last winter) and the rash on my legs that I thought were bug bites (last summer) and it just all seemed to click.
I was at my GP two days later and she said I had an "uncommon" rash on my buttocks and sent me to the dermatologist for a biopsy. I saw him two days ago, and he said "your rash looks like a common case of DH." He did do a biopsy, so now I wait.
So now I wait, it's a bit odd and nerve wracking. All the photos and my experiences tell me this is exactly what I've had all my life. One dermatologist did test me for celiac using a blood test about 7 years ago when she said my rash looked like a celiac rash. I was happy when it was negative. Now I know that doesn't mean I actually was/am negative.
I'm feeling a bit conflicted right now, I almost rather have an actual positive diagnosis than just a wishy washy one.
