Hi All,
I came across this forum after trying to research my diagnosed condition of Linear IgA Bullose Dermatosis. I began having a burning sensation associated with blisters that began to occur after taking amoxicillian back in April 2014. The blisters occur mostly on the palms of my hands and bottoms of feet. I did suffer through an entire body rash which became extremely itchy before beginning to take Dapsone to treat the condition. Now my flare ups are only on my hands and feet when I don't stay on top of the meds.
This is where I started to hear more about becoming Gluten Free. I was tested for Celiacs Disease and the tests came back negative. then I tried to be gluten free for month just to see if it would help my flare-ups. It did not seem to make a difference.
But now I am stuck taking Dapsone as the only medication which has worked to "band-aid" my disease.
I found it interesting that many people with DH take DApsone and I would like to connect with these people.
I feel stuck and as if I have no hope of dealing directly with healing my disease to try and better it permanently. I want to take action and I believe that trying a gluten free diet may be part of that.
For those of you taking Dapsone, do know of any major long term side affects? It seems there is nothing to be too worried about as long as you are not becoming anemic.
Do you know of anyone whom has taken it while pregnant? It is classified as a category C...which means they have not enough or no evidence on wether it is safe. We are planning on having one more child but are waiting until I see if this condition subsides within the next year. but its making me completely insane. My dermatologist says that hopefully it will "burn itself out". But we just don't know.
If you are taking Dapsone, should you be on a gluten free diet? Or is that the case because of the DH and the effects it has on your intestinal track?
I feel so terrible for those of you whom have no way to relieve the blisters and itching that is associated with DH. I have a very similar situation and I can relate...though my blisters burn and even feel hot to the touch. I cannot put my hands in warm water when the blisters are inflamed because of the pain it causes. It is almost as if I burned myself on the stove.
Thank you so much for any and all information gained on this post!