Hi everyone this will probably be a ramble but I'm honestly fed up.
A bit of background -
At 13/14 diagnosed with raynauds
At 15/16 horrible itch rash developed in both palms.
I am now 30 and struggling with numerous niggly complaints that alone I probably wouldn't even think about but put together they are adding up.
The only symptoms present now that have been there through out are the raynauds and the rash.
The rash is incredibly itchy , starts as red bumps, them little blisters which are quickly scraped off. At its worst I had to bandage my hands through the day and wear gloves to bed as I had scraped them so raw. Steroid creams had limited success with controlling this and symptoms would come and go. I seen a dermatologist in my teens but recieved no diagnosis or further treatment.
In mid 20s I decided to loose weight and list 5 stone. Throughout this period the rash improved but never disappeared. This remains the case now. In the past 2 weeks I have had 2 flares although they are nowhere near as severe as they used to be.
However for the past 18 months I have just been feeling really awful. The main issue is major fatigue i will sleep 9 hrs of an evening and still fall asleep through the day if the opportunity presents. Along with this I also have the following issues
Hair falling out
Bloating, bubbling and wind
Minor constipation
Extremely dry eyes (to the point I can no longer wear lenses)
Night Vision problems
Aches and pains (muscular and joints)
Irritation/moodswings
Raynauds
General sensitivity to cold
Now twice in the past 6 weeks I've had bloods done and had a no to coeliac. Also had a coeliac test done maybe 5 years ago which said the same.
My dad suffers from vitiligo and scleroderma and my dad's aunt from coeliac.
I spoke to my Dr after last bloods and she's baffled and is currently going back through records to the raynauds diagnosis to see if it sheds light and I'm back to see what she thinks on Tuesday.
My gut instinct is to diagnose the hand issues, shall I push for biopsies ?
Sorry for the ramble
Ali
A bit of background -
At 13/14 diagnosed with raynauds
At 15/16 horrible itch rash developed in both palms.
I am now 30 and struggling with numerous niggly complaints that alone I probably wouldn't even think about but put together they are adding up.
The only symptoms present now that have been there through out are the raynauds and the rash.
The rash is incredibly itchy , starts as red bumps, them little blisters which are quickly scraped off. At its worst I had to bandage my hands through the day and wear gloves to bed as I had scraped them so raw. Steroid creams had limited success with controlling this and symptoms would come and go. I seen a dermatologist in my teens but recieved no diagnosis or further treatment.
In mid 20s I decided to loose weight and list 5 stone. Throughout this period the rash improved but never disappeared. This remains the case now. In the past 2 weeks I have had 2 flares although they are nowhere near as severe as they used to be.
However for the past 18 months I have just been feeling really awful. The main issue is major fatigue i will sleep 9 hrs of an evening and still fall asleep through the day if the opportunity presents. Along with this I also have the following issues
Hair falling out
Bloating, bubbling and wind
Minor constipation
Extremely dry eyes (to the point I can no longer wear lenses)
Night Vision problems
Aches and pains (muscular and joints)
Irritation/moodswings
Raynauds
General sensitivity to cold
Now twice in the past 6 weeks I've had bloods done and had a no to coeliac. Also had a coeliac test done maybe 5 years ago which said the same.
My dad suffers from vitiligo and scleroderma and my dad's aunt from coeliac.
I spoke to my Dr after last bloods and she's baffled and is currently going back through records to the raynauds diagnosis to see if it sheds light and I'm back to see what she thinks on Tuesday.
My gut instinct is to diagnose the hand issues, shall I push for biopsies ?
Sorry for the ramble
Ali
